NDF Talks
Neuromuscular Disease FoundationWelcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…” Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy. Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for a... more
| Publishes | Daily | Episodes | 12 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Categories | BusinessNon-Profit | ||||
Listen to this Podcast
Latest Episodes
NDF Talks is happy to have Estie Rose educate us on the importance of pre-conception genetic screening and options available to help you have a child.
Estie is a certified genetic counselor and outreach coordinator forJScreen, a national non-profi... more
NDF Talks is happy to share a podcast from "The Fertile Life" with Dr. Shahin Ghadir that our Director of Emotional Wellness, Carol Gelbard, LCSW participated in
In this episode of "The Fertile Life" podcast, Dr. Shahin Ghadir, Fertility Specialis... more
A personal and informative interview/podcast with Kam Redlawsk, GNEM patient and advocate who sheds light on the ableism in our society, ways to break down barriers, and reduce feelings of shame and isolation for people who are disabled.
About NDF:... more
The problems with ableism in our culture; A Conversation with Dr. Farid Holakouee, NDF's Emotional Wellness Director, Carol Gelbard, LCSW and NDF CEO, Lale Welsh
About NDF: Our mission is to enhance the quality of the lives of people living with GN... more
Enjoy this podcast recapping themes covered in our recent patient HUDDLE detailing ways to “hit reset” in support of emotional wellness in 2021!
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy throug... more
"GNE Myopathy doesn't mean you can't follow your dreams or that your dreams can't change."
-Antionette
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and fund... more
For those of you who have been following our journey towards gene therapy for GNE myopathy, here’s a detailed conversation with our board chair Ralph Loren talking shop with our CEO Lalé Welsh.
About NDF: Our mission is to enhance the quality of th... more
“I someone tells me that I can’t go somewhere then I make sure that I go”
-Sabeen
About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical researc... more
Key Facts
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #34 |  Norway/Business/Non-Profit |
Top Non-Profit Podcasts
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
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| Professions | Age Range | Household Income | |||
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How many episodes of NDF Talks are there?
NDF Talks launched 5 years ago and published 12 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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