Café SYNGAP1
Syngap Research Fund, 501(c)(3)Bienvenidos al nuevo podcast de SRF en Español: Café Syngap1 pretender ser un espacio para encontrar apoyo, consejos y esperanza en una comunidad de Padres, Hermanos, Investigadores, Científicos, Terapeutas y todos aquellos involucrados en esta patología. La esperanza de nuestra presentadora Merlina Davila es que a partir de compartir nuestras historias, conocimientos, experiencias, retos, éxitos ... more
| Publishes | Monthly | Episodes | 33 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Language |  Spanish | Number of Listeners | Categories | Kids & FamilyParenting |
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Latest Episodes
Nohora es psicóloga de profesión y representante legal de la Fundación Dravet Latam. Su historia inspira: es una mamá incansable en la defensa de los derechos de su hija Luciana, quien tiene el síndrome de Dravet, y de las familias que conviven con u... more
Nuestra primera familia de Uruguay, Verónica comparte su historia cuyo amor no conoce límites. Se planta como una firme defensora de su hija Martina, buscando apoyo, servicio y oportunidades posibles para ayudarla avanzar en este camino.
Bio de ... more
Andrea es escritora y originaria de Chile. Ella es una madre atípica de corazón valiente, que transformó retos en fuerza. Su amor, lucha y voz son una guía e inspiración para otras familias.
Consiga los libros de Andrea aquí!
Bio de Merlin... more
En este episodio de Café Syngap1, Merlina le da la palabra a una mamá de la comunidad de enfermedades raras para contar su historia.
Desde España nos acompaña Italy, ella nos presenta su historia y la de sus hijas quienes conviven con una enfermeda... more
Desde Colombia, Yeleica nos trae su historia desde el diagnóstico y nos recuerda que a pesar de lo duro que pueda ser este, se va aprendiendo en el camino y se saca lo mejor de ser mamá.
Bio de Merlina
Información sobre ... more
En el episodio de hoy nos acompaña Dina Figueroa desde Nueva York. Dina es mamá de Maya, quien tiene 3 años y fue diagnosticada con Syngap1 en el 2022. Dina nos recuerda que debemos ser constantes y mantener siempre la esperanza.
Bio de ... more
Desde Buenos Aires, Argentina nos acompaña Sabrina Valdez. Ella nos cuenta la historia de Emma, quien fue diagnosticada con Syngap1 en el 2024. Aquí notamos la determinación imparable de una mamá por hacer todo lo posible en buscar las herramientas n... more
Hola y bienvenidos de nuevo al Café Syngap1 Podcast! Hoy tenemos una historia centrada en la lucha y amor incondicional; Jaime nos comparte su experiencia como cuidador exponiendo las dificultades y resiliencia del día a día.
Bio de Merli... more
Key Facts
Reviews
- Meaningful and respectful content in Spanish for the families
One of the primary objectives of SRF and Fondo Syngap is to ensure that families have access to content in Spanish that is both meaningful and respectful, in order to engage them and provide valuable information to the Community.
This is just one of the many initiatives that demands a great deal of effort, patience, and commitment from SRF team.
Apple Podcasts5mamasyngaplatina
United States2 years ago - El apoyo de nuestra comunidad es lo mejor!!
Gracias Merlina por darnos este espacio para compartir nuestras experiencias con Syngap 💗💗💗💗
Apple Podcasts5Sofi’s momUnited States2 years ago - Congratulations on your new adventure
Well done!
Apple Podcasts5zuzia.United States2 years ago - Amazing Support for all. Love this!
This podcast provides amazing support and connections for families spanning the globe!
Apple Podcasts5Nancy (Caren's sister)United States2 years ago - Great resource for Spanish speaking viewers
SynGAP doesn’t just affect English speaking people. This is a great new resource for those in our community whose first language is Spanish! Thank you for offering this great new show!
Apple Podcasts5mom2afUnited States2 years ago - Fabulous DEI patient engagement effort!
SRF is a leader in Podcasts to support their patient community, but this is next level, they have now done a new one in Spanish. This is how you support all patients, everywhere, when they are ready. You put the content out there for them.
Apple Podcasts5mobileuserwhoexpectsbetterUnited States2 years ago
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #17 |  Argentina/Kids & Family/Parenting |
Apple Podcasts | #52 | Argentina/Kids & Family |
Top Parenting Podcasts
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
|---|---|---|---|---|---|
| Interests | Professions | Age Range | |||
| Household Income | Social Media Reach | ||||
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Café SYNGAP1 launched 2 years ago and published 33 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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