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Artwork for Movers and Shakers: a podcast about life with Parkinson's

Movers and Shakers: a podcast about life with Parkinson's

Podot
Parkinson's Disease
Parkinson's
Deep Brain Stimulation
Mental Health
Palliative Care
Parkinson's UK
Diet
Constipation
Personal Independence Payment (PIP)
Hospital Care
Emotional Impact
Impulsive Behavior
Hypersexuality
Erectile Dysfunction
Universal Credit
Medication Safety
Parky Charter
Downing Street
Fibers
Diagnosis

Sign the Parky Charter petition: ParkyPetition.com

Movers and Shakers finds six friends – Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman – gathered in a Notting Hill pub to discuss the realities of life with Parkinson's. And maybe find a few silver linings!

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PublishesWeeklyEpisodes100Founded3 years ago
Number of ListenersCategories
ScienceHealth & Fitness

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Artwork for Movers and Shakers: a podcast about life with Parkinson's

Latest Episodes

It's the end of another year – and what a year it's been! From the Big Sing on World Parkinson's Day through the Parky Petition campaign and getting our debate in Parliament, 2025 has been a stellar year for the Movers and Shakers and our community. ... more

From our little corner of the Notting Hill pub, it can be hard to see what life is like for people with Parkinson's across the rest of the UK – let alone around the world! Today, however, we're talking about Parkinson's care in Africa, a continent wh... more

How do you run clinical trials that maximise the efficiency for patients, clinicians and drugs developers? That's the challenge being addressed by world's largest ever clinical trial of Parkinson's medications. To discuss this new, and potentially ex... more

So, after two long years of campaigning, this week the Parky Charter – our set of demands for the government – had its moment in Parliament. With the Movers & Shakers and other supporters in attendance, MPs debated the need for improved care for peop... more

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Recent Guests

Sir Andrew Mitchell
Former Secretary of State for International Development
Episode: Parkinson's in Africa
Dr. Natasha Fothergill-Misbah
Research Associate at the Population Health Sciences Institute, Newcastle University
Newcastle University
Episode: Parkinson's in Africa
Camille Carroll
UK neurologist and lead of EJS ACT PD trial
Not mentioned
Episode: The Mega Trial
Tom Foltini
Co-chief investigator of EJS ACT PD trial
Not mentioned
Episode: The Mega Trial
Kevin McFarthing
Consultant on innovation and patient advocate
Not mentioned
Episode: The Mega Trial
Helen Matthews
CEO of Cure Parkinson's
Cure Parkinson's
Episode: The Funding Machine
Claire Bale
Deputy Head of Research at Parkinson's UK
Parkinson's UK
Episode: The Funding Machine
Professor Dag Aarsland
A psychiatrist specializing in depression and Parkinson's disease.
King's College London
Episode: What Causes Depression?
Professor Glen Jeffery
Professor of Neuroscience at University College London
University College London
Episode: Light

Hosts

Rory Cellan-Jones
Host discussing his experiences and perspectives on life with Parkinson's alongside expert insights.
Gillian Lacey-Solymar
Host specializing in advocacy for Parkinson's patients, contributing personal stories and insight.
Mark Mardell
Co-host providing a rich background in journalism and personal reflections on living with Parkinson's.

Reviews

4.7 out of 5 stars from 1.6k ratings
  • Recent diagnosis ….

    I find your PodCast very helpful as I have recently diagnosed and the way you all discuss PD is strangely comforting.

    Apple Podcasts
    5
    MeridenMan
    United Kingdom7 months ago
  • Latest Podcast!! I am so pleased to hear that a link between between the brain and the gut t he

    especi

    Apple Podcasts
    5
    TrulyAS 60
    United Kingdoma year ago
  • A warm and life-affirming listen

    I have friends coping with PD, and that was the trigger for me to start listening. What kept me on board was the humour of the presenters and, dare I say, the love they have for each other.

    Apple Podcasts
    5
    mick kelly
    United Kingdoma year ago
  • Tips the balance between despair and hope

    Each episode provides new insights into PD and is delivered with humour.

    Apple Podcasts
    5
    cimplato
    Irelanda year ago
  • Great podcast

    My husband has recently been diagnosed and complains of the same issues as the presenters- 10 minutes with a specialist after waiting 6 months for the appointment, and then out the door with the rest of your life to manage. This podcast fills in many of those massive gaps. Thanks so much!

    Apple Podcasts
    5
    Bute239
    Australiaa year ago

Listeners Say

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Listeners appreciate the blend of humor and information, finding comfort in shared experiences.
Many highlight the podcast as insightful and relatable, providing a supportive community.
Some express a desire for more frequent episodes to satisfy their engagement with the topics discussed.

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

Parkinson's in Africa
Q: How does it compare to, say, Asia or other countries of a similar economic level?
Very similar challenges across Latin and South America and Southeast Asia, with infrastructural problems and challenges with workforce and access to medication and stigma.
Parkinson's in Africa
Q: Can I just ask both of you, please, before we start? And when you say Africa, is it fair to describe a whole continent's problem? I mean, there must be differences.
Yes, we can't just homogenize the continent of Africa; each country has its unique challenges.
The Mega Trial
Q: Can we talk about the money for a second?
The funding is part from government and includes a consortium of funders like Cure Parkinson's, Parkinson's UK, and others.
The Mega Trial
Q: Can you point to things that you suggested, which are now in the protocol?
We were keen on having all patient-reported outcomes, which we ended up with, reflecting the patients' actual experiences.
What Causes Depression?
Q: What should someone do if they are feeling depressed?
They should go to their GP and not stop until they receive proper action, either a referral to a specialist or therapies.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

A group of friends shares candid discussions about living with Parkinson's disease, providing both personal narratives and expert insights. The podcast frequently addresses themes of advocacy, health advancements, community engagement, and the emotional complexities related to managing the condition. Listeners can expect a blend of humor and sincerity as hosts discuss their own experiences, explore scientific research, interview healthcare professionals, and highlight initiatives such as the Parky Charter. This unique combination makes the content relatable and informative, offering hope and a sense of camaraderie to those affected by Parkinson's.

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. The Parkinson's Podcast
2. 2 Parkies in a Pod: a Parkinson's Podcast
3. Rosebud with Gyles Brandreth
4. Radical with Amol Rajan
5. Off Air with Jane & Fi

How many episodes of this podcast are there?

this podcast launched 3 years ago and published 100 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Sir Andrew Mitchell
2. Dr. Natasha Fothergill-Misbah
3. Camille Carroll
4. Tom Foltini
5. Kevin McFarthing
6. Helen Matthews
7. Claire Bale
8. Professor Dag Aarsland

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