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Artwork for Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

Susan Newman Manfull, PhD
PANDAS
PANS
Lyme Disease
Neuroinflammation
Psychosis
Neuropsychiatric Disorders
Pediatric Acute-Onset Neuropsychiatric Syndrome
Bartonella
Children's Health
Gut Microbiome
Autoimmune Disorders
Healthcare Insurance Denial
Claimable
DNA Damage Response Genes
Cognitive Behavioral Therapy
Borrelia Burgdorferi
Neuropsychiatric Symptoms
Georgetown University
Tonsillectomy
Assembly Bill 2105

Hello and welcome to Untangling PANDAS & PANS, a podcast about two relatively unknown medical disorders characterized by the sudden and dramatic onset of obsessions and compulsions, vocal or motor tics, or restricted eating behavior -- and a whole host of other symptoms -- following strep or other bacterial or viral infection. Sometimes overnight. I have the privilege of interviewing some of the... more

PublishesMonthlyEpisodes25Founded2 years ago
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Artwork for Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

Latest Episodes

What if sudden OCD, tics, and food restriction after an infection aren’t “all in the head,” but start with immune cells carrying a biochemical message to the brain? We sit down with Dr. Fulvio d'Acquisto—immunologist, psychotherapist, and founder of ... more

The Manfulls open up about losing their daughter, Alex, to complications of PANDAS/PANS—and how that loss became a focused mission to change the way medicine recognizes and treats infection‑triggered neuroimmune disorders. From kitchen‑table grief to... more

A sore throat that ends in compulsions, tics, and a child who suddenly can’t sleep or attend school sounds improbable—until you hear a pediatric rheumatologist walk through the biology. Dr. J. Patrick Whelan of UCLA sits down with Dr. Susan Manfull, ... more

What makes some people vulnerable to devastating chronic illness after infections that most recover from easily? Dr. Michal "Mikki" Tal, pioneering immunoengineer at MIT, is tackling this question through her groundbreaking Maestro study - the larges... more

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Recent Guests

Dr. J. Patrick Whelan
Pediatric rheumatologist and associate clinical professor of pediatrics in rheumatology at UCLA
UCLA
Episode: S2 E19: Rheumatic Clues To Understanding the PANDAS/PANS Puzzle -- A Conversation with Dr. J. Patrick Whelan
Dr. Mikki Tal
Immunoengineer and researcher at MIT
Massachusetts Institute of Technology
Episode: S2 E18: My Conversation with Dr. Mikki Tal about How She Is Revolutionizing Our Understanding of Infection-Associated Chronic Illness
Sheila Gauch
Principal and Clinical Director of Dearborn Academy, expert in mental health and education for students with PANS and PANDAS
Dearborn Academy
Episode: S2 E17: Sheilah Gauch Offers Eight Tips for Students with PANS and their Parents on How to Successfully Transition to College...or Anywhere Else
Dr. Andrew Baumel
General practitioner with over 30 years of experience, specializing in treating pediatric cases of PANDAS and PANS.
Framingham Pediatrics
Episode: S2 E16: Dr. Andrew Baumel: One Pediatrician's Journey to Include Mild Cases of PANDAS/PANS into his Everyday Practice
Dr. Uğur Akcan
Post-doctoral neuroscience researcher at Columbia University
Columbia University
Episode: S2 E15: Science Under Siege: A conversation with Dr. Uğur Akcan and Dr. Dritan Agalliu about PANDAS Research, NIH Cuts, and the Power of Community
Dr. Dritan Agalliu
Associate Professor of Pathology and Cell Biology at Columbia University
Columbia University
Episode: S2 E15: Science Under Siege: A conversation with Dr. Uğur Akcan and Dr. Dritan Agalliu about PANDAS Research, NIH Cuts, and the Power of Community
Dr. Sarah O'Dor
Instructor in psychiatry at Harvard Medical School and Director of Research at the Pediatric Neuropsychiatry and Immunology Program at Massachusetts General Hospital
Massachusetts General Hospital
Episode: S2 E13: Understanding the Role of a Psychologist in PANDAS and PANS: A Conversation with Dr. Sarah O'Dor
Dr. Warris Bokhari
CEO and co-founder of Claimable, specializing in healthcare insurance claim assistance.
Claimable
Episode: S1 E9: Dr. Warris Bokhari Vows to Make Healthcare Equitable One Unjust Insurance Denial at a Time
Dr. Mark Pasternack
Chief of Pediatric Infectious Disease at Mass General Hospital.
Mass General Hospital
Episode: S1 E9: Dr. Warris Bokhari Vows to Make Healthcare Equitable One Unjust Insurance Denial at a Time

Host

Dr. Susan Manfull
Host and Executive Director of The Alex Manfull Fund. A social psychologist who shares personal stories of loss and advocacy surrounding PANDAS and PANS, aiming to educate listeners about these neuropsychiatric disorders.

Reviews

4.9 out of 5 stars from 38 ratings
  • So informative

    This show is awesome for education on PANDAS and PANS. Up to date on many aspects and relevant topics dealing with care and treatment of people with P/P and great support for families. This podcast is a superb resource!

    Apple Podcasts
    5
    JayhawkSunrise
    United Statesa year ago
  • Untangling PANDAS and PANS

    As a PANDAS parent, I am so grateful to Susan and the Alex Manfull Fund for this podcast. Not only is it spreading awareness of these neuroimmune illnesses, but is bringing all the parties to the table, so to speak. If we keep putting our collective heads together, we will figure this stuff out sooner. All these children and young adults needed it yesterday.

    Apple Podcasts
    5
    JenAct64
    United States2 years ago
  • Incredibly insightful podcast!!!

    Expanding the understanding of neuropsychiatric disorders, and creating a space for rethinking autoimmunity, infection and mental illness.

    Apple Podcasts
    5
    Daniela-S-S
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Insights into neuropsychiatric disorders and the intersection of autoimmunity and mental health, beneficial for a broader audience.
Informative resource for education on PANDAS and PANS, pertinent for those seeking care and treatment insights.
Gratitude from parents who appreciate awareness efforts and the collaborative approach to understanding these disorders.

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

S2 E20: The Alex Manfull Fund Reflects on the Past and Looks to the Future
Q: What made you feel like, yes, this is why we do this? Was there something specific last year that reinforced that we're on the right track?
Lorna Breithaupt's work in which she has identified protein profiles that appear to be a biomarker is what we need in this field.
S2 E17: Sheilah Gauch Offers Eight Tips for Students with PANS and their Parents on How to Successfully Transition to College...or Anywhere Else
Q: Can you elaborate on the first tip for caregivers or parents?
Empower your child to understand PANS and PANDAS, ensuring they know their illness and can advocate for themselves at college.
S2 E17: Sheilah Gauch Offers Eight Tips for Students with PANS and their Parents on How to Successfully Transition to College...or Anywhere Else
Q: How did you get into this area?
Sheila explains her personal experience with her own children's mental health issues, which led her to discover PANS and PANDAS when traditional approaches weren't working.
S2 E14: When Everything Changes: Jen's Journey with PANS/PANDAS and the Fight to Be Believed
Q: What would you like to share with others who are in a similar situation?
Pursue answers within your limits, and don't just accept anxiety as the cause, because it doesn't explain everything.
S2 E16: Dr. Andrew Baumel: One Pediatrician's Journey to Include Mild Cases of PANDAS/PANS into his Everyday Practice
Q: What are some of the other diagnoses that you may consider when looking at your patient?
You should consider trauma, Sydenham's Chorea, other OCD disorders, and anxiety disorder in differential diagnoses.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

Focusing on the complexities of two little-known yet significant neuropsychiatric disorders, the content features discussions that bridge medical insight, personal narrative, and advocacy. Episodes frequently involve top researchers and practitioners who delve into PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus) and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), exploring their connections to infections and the immune system. The show stands out for its emotional depth, often intertwining the host's personal experiences with broader medical discussions, thereby raising awareness for these conditions while emphasizing the urgency of early diagnosis and appropriate treatment.

Listeners are likel... more

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. Demystifying PANS/PANDAS Podcast
2. Mom & Doc Talk: Healing PANS/PANDAS
3. The Dr. Hyman Show
4. We Can Do Hard Things
5. Juicy Crimes with Heather McDonald

How many episodes of this podcast are there?

this podcast launched 2 years ago and published 25 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Dr. J. Patrick Whelan
2. Dr. Mikki Tal
3. Sheila Gauch
4. Dr. Andrew Baumel
5. Dr. Uğur Akcan
6. Dr. Dritan Agalliu
7. Dr. Sarah O'Dor
8. Dr. Warris Bokhari

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