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Artwork for Make Visible: Chronic Illness Explored

Make Visible: Chronic Illness Explored

Visible with Emily Kate Stephens
Long COVID
Brain Fog
Fibromyalgia
Chronic Overlapping Pain Conditions
Myalgic Encephalomyelitis/chronic Fatigue Syndrome
Me-Cfs
Complex Chronic Illness
Health Care Education
ME/CFS
Cognitive Impairment
Centers For Disease Control and Prevention (CDC)
Community Support
Chronic Migraine
Chronic Fatigue Syndrome
Postural Orthostatic Tachycardia Syndrome
Cognitive Neurology
Chronic Illness
Mind, Body, and Soul
Medscape
Endometriosis

Shining a light on invisible illness.Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive... more

PublishesTwice monthlyEpisodes27Foundeda year ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for Make Visible: Chronic Illness Explored

Latest Episodes

Why can exercise cause post-exertional malaise (PEM) in complex chronic illnesses like ME/CFS and Long Covid, and how do we avoid the crashes?

If you experience a crash after a period of exertion, if traditional methods of ‘increasing fitness’ actua... more

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Welcome back to Make Visible.

For those living with chronic illness or invisible illness, the New Year rarely brings a “new you” — and that can be especially hard after the emotional and physical demands of the holiday season. If you’re navigating M... more

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Dr Peter Rowe is a leading voice for adolescents and young people with Ehlers Danlos Syndrome (EDS) and Fatigue-related conditions.  An expert in orthostatic intolerance (OI), which is prevalent in nearly 100% of his patients, he believes that these ... more

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Amy Mooney’s aim is to improve the quality of life for her patients.  She is an occupational therapist specialising in the treatment of conditions that cause post-exertional malaise (PEM) and their comorbidities  – working with patients with ME/CFS, ... more

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Recent Guests

Todd Davenport
Physiotherapist and academic specializing in chronic illness research
Various academic institutions
Episode: #26 The truth about exercise & pacing in ME/CFS, Long Covid & POTS, with Todd Davenport
Gez Medinger
A public figure actively involved in discussions about chronic illnesses and patient advocacy.
Episode: #25 You are not alone: navigating post-holiday fatigue, grief and acceptance in chronic illness. Gez Medinger & Emily Kate Stephens
Amy Mooney
Occupational therapist focusing on chronic illness management
Episode: #23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney
Dr. Kevin Tracey
Neurosurgeon, scientist, and entrepreneur, CEO of the Feinstein Institute in New York.
Feinstein Institute
Episode: #22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey
Dr. Melanie Hoppers
Physician and co-founder of Physicians Quality Care Center, with focus on ME-CFS and Long Covid
Bateman Horne Center
Episode: #20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Abigail Goodship
Biomedical scientist and researcher at Imperial College
Imperial College
Episode: #19 Female hormones and the immune system, with Abigail Goodship
Dr. Rob Wüst
Exercise physiologist at Vrije Universiteit Amsterdam, specializing in Long Covid and ME-CFS research
Vrije Universiteit Amsterdam
Episode: #17 PEM: measuring the threshold and understanding the cause with Dr. Rob Wüst
Dr. Michal Caspi Tal
Researcher at the Tal Research Group, MIT
MIT
Episode: #16 Why are women more susceptible to complex illness? Predicting chronic conditions with Michal Caspi Tal PhD
Dr. David Putrino
Researcher and clinician at Mount Sinai focusing on complex chronic illnesses.
Mount Sinai
Episode: #14. Wearable technology and patient-led innovation with Dr. David Putrino

Host

Emily Kate Stephens
Host discussing the experiences and research surrounding complex chronic illnesses, bringing in a wealth of interviews with leading experts and personal insights.

Reviews

4.9 out of 5 stars from 150 ratings
  • Mixed feelings!

    The majority of the interviews are excellent but I’m struggling with Emily Kate Stephens excited remarks about ‘mind-body’. (NB the actual phrase is soul destroying.) For context, inflammatory markers and sympathetic activation are also high in rheumatoid arthritis, lupus, MS etc. I’m not discounting the benefits of good quality rest, or what would normally be called lifestyle management in other conditions. I’m very open nervous system regulation strategies but we are SO far from having won the... more

    Apple Podcasts
    3
    Ruth Devon
    United Kingdom10 days ago
  • Great Info for ME/LC Patients & Caregivers

    Emily Kate and the team at Visible have done more to help me better understand and manage ME than the dozens of physicians I’ve dealt with over the past 20 years. Thank you for this podcast and the Visible device!

    Apple Podcasts
    5
    Gaylans
    United States3 months ago
  • So informative and helpful

    I just discovered this podcast today and the first episode I listened to was Emily and Gez sharing a bit about their personal journeys. Many deep sighs (and nearly tears) emanated from me as I listened to Emily and Gez articulate their challenges and insights that so closely resemble my experience with LC and ME/CFS. I am now sharing this episode with loved ones in the hopes that they will better understand what I’ve been going through for the past 2.5+ years. Would love to hear more details abo... more

    Apple Podcasts
    5
    tootsie5678
    United States4 months ago
  • Outstanding - A Must-Listen For Long Covid Sufferers

    Emily Kate Stephens’ prior podcast was a light for me in the first dark years of Long Covid. Visible is an even better podcast - not only for Long Covid, but for anyone living with energy-limiting conditions. I love staying on top of medical perspectives and studies and hearing from a diverse group of experts. The links to additional information are helpful in identifying medical studies that I’m interested in exploring further.

    Thank you, Emily Kate, for providing information on medical condi... more

    Apple Podcasts
    5
    jenras
    United States4 months ago
  • Ep.18 Cognitive Pacing

    Since being diagnosed with CFS & FMS fifteen years ago, this is the first time I’ve heard ‘cognitive pacing’ being mentioned and I couldn’t agree more.

    Apple Podcasts
    5
    pk42
    United Kingdom5 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Many feel empowered and informed by the practical advice given, often remarking on the accessibility of the expert discussions around important but challenging health topics.
Some feedback suggests a desire for a more engaging presentation style, with listeners seeking narrative cohesion amid dense information, thereby indicating room for improvement in the podcast's format.
Listeners praise the podcast for providing insightful discussions on managing complex chronic illnesses and appreciate the diverse range of expert guests. They commonly express gratitude for the personal experiences shared, which resonate with their own struggles, highlighting the community-building aspect of the content.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

#22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey
Q: What is the Vagus Nerve that everyone talks about?
Dr. Tracey explains the anatomy and function of the Vagus Nerve, including its role in sensory and motor information processing in the body.
#22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey
Q: Can you talk me through how you went from being a child who wanted to understand what was happening to people, to being someone now who is running an institute?
Dr. Tracey reflects on his journey, highlighting the importance of understanding personal values and making conscious choices in life and career.
#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Q: How can people recognize if it's actually a cognitive or emotional thing that has pushed them into PEM?
Keeping a log can help identify patterns; symptoms like trouble concentrating or losing train of thought are clues to needing a break.
#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Q: What is that physiological and biological basis that means medications don't work in PEM?
The autonomic nervous system is on overdrive and your mitochondria aren't functioning properly, leading to ineffective medication absorption and increased sensitivity.
#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Q: Can you tell me what this document is?
It's a clinical care guide for treating patients with ME-CFS and Long Covid, focusing on breaking down care approaches.

Audience Metrics

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Frequently Asked Questions About Make Visible: Chronic Illness Explored

What is Make Visible: Chronic Illness Explored about and what kind of topics does it cover?

Content focuses on elucidating the complexities of various invisible illnesses like Long Covid, ME/CFS, and Ehlers-Danlos syndrome. Through dialogues with leading experts, the program covers crucial topics such as the latest research, practical strategies for managing symptoms, and advocacy efforts in the realm of chronic illness. Notably, a strong emphasis is placed on using wearable technology and scientific insights to empower listeners and enhance their quality of life. This informative resource is aimed at not only patients but also caregivers and healthcare professionals, making it unique in its comprehensive approach to a broad range of health issues.

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Which podcasts are similar to Make Visible: Chronic Illness Explored?

These podcasts share a similar audience with Make Visible: Chronic Illness Explored:

1. Long Covid Podcast
2. Tara Brach
3. Being Well with Forrest Hanson and Dr. Rick Hanson
4. 10% Happier with Dan Harris
5. A Slight Change of Plans

How many episodes of Make Visible: Chronic Illness Explored are there?

Make Visible: Chronic Illness Explored launched a year ago and published 27 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Make Visible: Chronic Illness Explored?

Recent guests on Make Visible: Chronic Illness Explored include:

1. Todd Davenport
2. Gez Medinger
3. Amy Mooney
4. Dr. Kevin Tracey
5. Dr. Melanie Hoppers
6. Abigail Goodship
7. Dr. Rob Wüst
8. Dr. Michal Caspi Tal

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