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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin
Sarcoidosis
Mental Health
Cardiac Sarcoidosis
Neurosarcoidosis
Foundation For Sarcoidosis Research
F-Sulfidamide
Prednisone
Healthcare Advocacy
Ventricular Tachycardia
June 2024
The Foundation For Sarcoidosis Research
Atyr Pharmaceuticals
Patient Awareness
Avid Runners
Awareness Campaigns
Clinical Trials
Namilumab
Life Insurance
Community Outreach
Pulmonary Sarcoidosis

Fighting sarcoidosis as well as other rare diseases.

PublishesTwice monthlyEpisodes161Founded6 years ago
Number of ListenersCategories
MedicineFitnessHealth & Fitness

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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Latest Episodes

A new study out of India shows a bit of crossover between sarcoidosis and lung cancer.  In this episode of the FSR Sarc Fighter podcast, I'll take a look at the study and what it reveals — including a new drug, Metformin, previously used to treat Typ... more

Basim Karim is a fighter.  He's battled HIV for more than two decades, has had COVID five times, and now has Sarcoidosis in multiple parts of his body.  Doctors face a special problem with him because he cannot allow his immune system to be too depre... more

What if the cause and a potential cure for sarcoidosis were hidden in plain view -- on your skin?   According to research by Dr. Thomad Leung in Philadelphia, that might be the case.  In this episode of the FSR Sarc Fighter podcast, Dr. Leung explain... more

We've talked about a lot of different ways sarcoidosis can affect the body.  But this is the first time we've talked to a patient who has hypercalcemia -- where there is too much calcium in the blood.  And yes, it can be caused by sarcoidosis.  It's ... more

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Recent Guests

Basim Karim
An HIV survivor and sarcoidosis patient sharing his health challenges and advocacy for better treatment options.
Episode: Episode 152 Basim Karim is fighting sarcoidosis while being HIV positive
Dr. Thomas Leung
Associate Professor of Dermatology and researcher in sarcoidosis and immunology
Perlman School of Medicine, University of Pennsylvania
Episode: Episode 151 | Dr. Thomas Leung is using skin research to unravel the mysteries of sarcoidosis
Chris Cermak
A patient living with hypercalcemia caused by sarcoidosis
Episode: Episode 150 | Chris Cermak has hypercalcemia caused by sarcoidosis
Dr. Ennis James
Pulmonary and critical care physician specializing in sarcoidosis, member of the Medical and Scientific Advisory Board for FSR
Medical University of South Carolina
Episode: Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Tricha Shivas
Chief of Staff and Strategy at FSR
Foundation for Sarcoidosis Research
Episode: Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Emily Dickens
Chief of Staff, Head of Government Affairs and Corporate Secretary for SHRM
Society for Human Resource Management
Episode: Episode 147 | The FMLA Clarification -- Part 1 Allowing patients to use FMLA to participate in clinical trials
Marion Paetznik
Physical therapist with a personal connection to sarcoidosis.
Episode: Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
Taylor Harwood
Senior Research Coordinator for the Foundation for Sarcoidosis Research.
Foundation for Sarcoidosis Research
Episode: Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
Dr. Courtney Montgomery
A researcher focused on the genetic and environmental factors influencing sarcoidosis.
Oklahoma Medical Research Foundation
Episode: Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.

Host

John Carlin
Host of various podcasts focusing on sarcoidosis, including patient stories, medical advancements, and advocacy.

Reviews

4.9 out of 5 stars from 70 ratings
  • Not alone

    Hearing others stories has helped me not feel alone. Thank you!

    Apple Podcasts
    5
    kimeorr
    United States3 months ago
  • Informative and real

    I live in Australia and have learnt so much about sarcoidosis listening to this podcast. I’m afraid I don’t like the music intro, Zombie, it’s unsettling.

    Apple Podcasts
    5
    greenalice
    Australia8 months ago
  • Great podcast!

    Despite likely having sarcoid for over 25 years (uveitis likely from sarcoid ), it’s only been official since my lung biopsy this past summer. These episodes have been so helpful. Keep up the great work!!

    Apple Podcasts
    5
    Kat00012
    United States2 years ago
  • Very nice idea this podcast

    That's very good idea for people who want to know more about sarcoidosis. Nice host thanks John

    Apple Podcasts
    5
    GesiuGalaz
    Poland2 years ago
  • Great information!!!

    I been living with pulmonary sarcoidosis for 19 years now. I am so glad there is a new treatment for this disease. I enjoyed the information I received from the Sarc Fighter podcast. Keep up the good work, us sarc warriors can use all the help we can get.

    Apple Podcasts
    5
    Frankiec72
    United States3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Positive reviews emphasize the educational aspects of the episodes, often describing the podcast as informative and inspiring for those affected by sarcoidosis.
Some listeners express appreciation for the balance of patient stories and expert opinions, indicating that these elements enrich their understanding of the disease.
Listeners appreciate the deep insights and personal stories shared, highlighting a sense of community and shared experience.

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

Episode 151 | Dr. Thomas Leung is using skin research to unravel the mysteries of sarcoidosis
Q: Do you think a diagnostic blood test for sarcoidosis is a reality in the next five to ten years?
I hope so, but we need to validate ILC1 and convert the test into something feasible for all clinics.
Episode 151 | Dr. Thomas Leung is using skin research to unravel the mysteries of sarcoidosis
Q: What triggers the whole process of sarcoidosis?
We haven't been successful in finding it yet, but there might be a non-infectious trigger.
Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.
Q: Are you making any progress?
Yes, we've advanced in identifying what genes are doing within individual cells and determining targets for treatment.
Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.
Q: What is your research focused on?
We're trying to find out why the immune system is dysregulated and looking at genetic and environmental factors that contribute to sarcoidosis.
Episode 140 | Getting your questions answered at the 2025 FSR Global Virtual Sarcoidosis Summit
Q: Who do you think is the perfect audience for the summit?
Patients and caregivers are the primary audience, but anyone affected by sarcoidosis can benefit.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

Focused on the experiences and challenges faced by individuals living with sarcoidosis and other rare diseases, this podcast explores personal stories, medical advancements, and advocacy efforts within the realm of chronic illness. Frequent discussions encompass topics such as treatment options, the intricacies of navigating healthcare, and the importance of community support for patients and their families. Featuring interviews with both patients and medical professionals, the content is designed to inform, empower, and inspire those affected by these conditions to take charge of their health journeys and find solace in shared experiences.

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These podcasts share a similar audience with this podcast:

1. The Daily Show: Ears Edition
2. The Mel Robbins Podcast
3. On Purpose with Jay Shetty
4. Huberman Lab
5. The Best People with Nicolle Wallace

How many episodes of this podcast are there?

this podcast launched 6 years ago and published 161 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Basim Karim
2. Dr. Thomas Leung
3. Chris Cermak
4. Dr. Ennis James
5. Tricha Shivas
6. Emily Dickens
7. Marion Paetznik
8. Taylor Harwood

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