Rephonic
Artwork for The POTScast
Postural Orthostatic Tachycardia Syndrome
Mast Cell Activation Syndrome
POTS
Chronic Illness
Long COVID
Functional Medicine
Health Care Strategy
Acting
Dancing
Brain Fog
Dizziness
Nausea
Vitamin B12
Mental Health
Venous Insufficiency
Neurology
Mast Cells
Psychiatric Symptoms
Panic Disorder
Mood Disorders

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Eac... more

PublishesWeeklyEpisodes250Founded5 years ago
Number of ListenersCategories
MedicineEducationSelf-ImprovementHealth & Fitness

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Artwork for The POTScast

Latest Episodes

Surviving severe COVID was just beginning of Sophie's health adventure.  She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped (but not as much as hoped), how she has adjusted ... more

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness.  In this episode she describes the process, how to maxi... more

Western folk singer-songwriter Nellie has recorded multiple albums and EPs, toured nationally from Alaska to Nashville, appeared on PBS’s Songs at the Center, opened for Grammy-nominated artists, and become a beloved regular at the Woody Guthrie Folk... more

Dr. Spiritos is double board certified in gastroenterologist and internal medicine, and specializes in IBS, gut motility, POTS and the complex conditions and symptoms that go along with it.  He and Dr. Dempsey discuss IBS, parasites, SIBO, CD117 stai... more

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Recent Guests

Nancy Cavey
Disability Benefits Attorney with extensive experience in social security and long-term disability cases, specializing in autonomic dysfunction and invisible illnesses.
Cavey Law
Episode: Attorney Nancy Cavey on disability benefits for POTS/dysautonomia
Dr. Zac Spiritos
Gastroenterologist specializing in GI and liver disorders, with a focus on POTS and MCAS
Ever Better Medicine
Episode: Zac Spiritos, MD, MPH on neurogastroenterology with Dr. Tania Dempsey on Mast Cell Matters
Deena Chihade
Board-certified vascular surgeon with extensive experience treating vascular issues
St. Louis Vascular Surgical Specialists
Episode: Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS
Robert Hacker
Board-certified general and vascular surgeon, fellow of multiple surgical organizations
St. Louis Vascular Surgical Specialists
Episode: Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS
Heather Perne
Nurse Practitioner specializing in vascular medicine and connective tissue disorders.
ProMedica Jobs Vascular Clinic
Episode: Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS
Dr. Kathy Peterson
President and Founder of Standing Up to POTS
Standing Up to POTS
Episode: Live from the 12th annual Run for Research - interviews with participants
Matt Buer
Volunteer and generous sponsor of the event
Thrivent Main Street Financial Group
Episode: Live from the 12th annual Run for Research - interviews with participants
Dr. Robert Groysman
A physician with expertise in treating long COVID, POTS, MCAS, and dysautonomia.
Clinic in Irving, Texas
Episode: Dr. Robert Groysman on mechanisms, novel treatments, E.A.T., stellate ganglion block and more
Jill Krapf
Board-certified OBGYN specializing in female sexual pain disorders.
Center for Vulvovaginal Disorders, Florida
Episode: Jill Krapf, MD on painful sex, vulvovaginal disorders and mast cells with Dr. Tania Dempsey on Mast Cell Matters

Host

Jill Brook
Host of the podcast, actively engages with guests to provide insights into living with POTS and MCAS by blending patient narratives with expert medical advice.

Reviews

4.9 out of 5 stars from 285 ratings
  • I love this podcast

    This is a wonderful resource! I am grateful it’s out there. Thank you!

    Apple Podcasts
    5
    P Terp
    United States5 months ago
  • Love with Caveats

    This podcast and the Standing Up to POTS website have been instrumental in my health journey. To this day, I cannot find a medical professional to help with my POTS and EDS. This resource has been invaluable for treating my POTS; from how much salt and I water I should be consuming per day to experimenting with Vitamin D. It also helped me to self-diagnose my venous insufficiency and pursue medical treatment for it (side note: I did have the ablation procedure and I still have POTS, BUT there ha... more

    Apple Podcasts
    3
    WB7591
    United Statesa year ago
  • Good information!

    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️

    Apple Podcasts
    5
    MeliDiamonds
    United States2 years ago
  • Love this! So helpful and upbeat.

    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. W... more

    Apple Podcasts
    5
    proved point
    United States2 years ago
  • Thank you for your service ♥️

    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the informative nature of the content and how relatable the experiences shared are.
Overall, the discussions are regarded as compassionate and empathetic, making listeners feel understood and supported.
The personal stories shared by guests resonate deeply with the audience, fostering a sense of community.
Some feedback suggests a desire for more varied viewpoints on medical and dietary advice.
Many find the podcast to be an invaluable resource for managing chronic illnesses like POTS and MCAS.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia
Q: When should someone consider hiring an attorney to help with their disability claims?
They should consider consulting an attorney as soon as they begin to have problems working, especially to understand their policy and the strength of their medical records, rather than waiting until they've been denied.
Attorney Nancy Cavey on disability benefits for POTS/dysautonomia
Q: Can you share a bit about what kinds of disability cases you typically handle and then how POTS fits in?
We handle cases for people looking for social security disability benefits and who may have a disability insurance policy through their employer or on their own, so that's how we are involved with the POTS community.
Singer-songwriter Nellie Clay on “the hangover without the party”
Q: What did you do about your diagnosis journey?
After experiencing a severe decline in health and a collapse, she received a quick diagnosis of POTS from a cardiologist who recognized her symptoms after tests at the ER.
Singer-songwriter Nellie Clay on “the hangover without the party”
Q: What was your first sign of POTS?
Nellie first experienced a hangover-like feeling without the party, extreme fatigue, and pressure in her head, leading her to realize something was seriously wrong.
Singer-songwriter Nellie Clay on “the hangover without the party”
Q: Can you tell us a little bit about what your life was like, I don't know, like in the five years leading up to when you first got sick?
Nellie describes her life as a musician with a hectic schedule, touring around the country and seeking personal growth in both music and experiences before her illness struck.

Audience Metrics

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Frequently Asked Questions About The POTScast

What is The POTScast about and what kind of topics does it cover?

This podcast focuses on providing comprehensive information about Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS), along with other related chronic illnesses. Episodes feature insightful discussions with leading medical professionals as well as personal stories from patients, aiming to foster a supportive community and empower listeners with useful tools and knowledge to manage their conditions effectively. The unique monthly series, Mast Cell Matters, highlights advanced treatment approaches and the experiences of experts in mast cell disorders, enhancing its appeal to those seeking specific information on this often-overlooked aspect of chronic health issues.

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How many listeners does The POTScast get?

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To see how many followers or subscribers The POTScast has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

How many episodes of The POTScast are there?

The POTScast launched 5 years ago and published 250 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact The POTScast?

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Where can I see ratings and reviews for The POTScast?

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What guests have appeared on The POTScast?

Recent guests on The POTScast include:

1. Nancy Cavey
2. Dr. Zac Spiritos
3. Deena Chihade
4. Robert Hacker
5. Heather Perne
6. Dr. Kathy Peterson
7. Matt Buer
8. Dr. Robert Groysman

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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